Tuesday, October 8, 2013
Making the most of it
Sunday, December 2, 2012
Stepping Out
For example, last week I was out on my own with F!ash and had only got to the end of my street when an attack took place. I needed to cross the road, which was busy with school-run traffic. The lane nearest to me was very busy, and soon filled with a lot of stationary traffic. The other lane was less busy. I waited until I could hear a gap in the far traffic and gingerly ventured out into the standing traffic to assess the chances of getting across safely. Just as I step into the road I hear a woman's voice - "Go on love, you're alright, it's clear". I'm pretty sure that's whatt she said, but it was a bit tricky to hear, due to the noise of a car approaching rather fast. So I ignored her encouragement to step infront of said car and eventually she called out "No! Not now!" - an entirely unnecessary warning as I wasn't about to follow her original instruction. I have learnt over the years one of the golden rules of living with sight loss - don't trust people who can see.
This incident came shortly after another attempt on my life which took place while I was undrgoing training with F!ash. Thinkinng about it, perhaps this was deliberate - maybe they thought we were an easier target. Again, we were waiting at standing traffic. I patiently waited for the traffic lights to change and for the vehicle in front of me to move away, before I gave the instruction to F!ash to cross. As I was still training, my pursuer clearly hadn't realised that I had an instructor with me. Thankfully, she noticed that the van that had just pulled away had not judged the lights properly and didn't have time to complete his move, so then decided to reverse back towards me. She was able to stop him before he could mow us both down.
Disturbingly, I think whoever is overseeing this plot to do me in has also enlisted the help of my nearest and dearest. In fact, I've had a number of near misses with the dear missus. One of her favourite ploys also involves road crossing. As we stand waiting to cross a roadd togetheer, she has a habit of saying "OK" about 5 seconds before a car whizzes past. So far, I've always heard the car approaching and ignored her. She claims "OK" means "OK to cross once this speeding car has gone past" but I'm not so sure.
It's no wonder some blind people don't go out much!
Saturday, June 16, 2012
I'm still sitting
I have to admit, I would not have thought of parting with any hard earned cash to go and see Elton John. I don’t class myself as particularly trendy or alternative, but he’s always been a wee bit too middle-of-the-road for me. And after the diamond jubilee, I felt I’d had my fill of ageing queens. But when I was offered tickets to go to his gig in Newcastle, I thought it best not to lead a gift horse to water without closing the stable door first. When I asked my loved ones who wanted to come with me, the excitement was almost existent. Dom finally decided that, although he ‘hated’ Elton, he didn’t despise him enough to turn down a free gig.
On our arrival at the venue, Dom confirmed that he probably was the youngest person there, and there were quite a lot of older people. I wasn’t sure how to feel about this. Am I one of them now? I guess so...with failing sight, grey hair and a recent hernia op scar, I probably didn’t stand out in the crowd of coffin-dodgers.
Although the seats were pretty close to the front, they were a little wasted on me. I could just about make out a few different shaped blobs on the stage. One of the blobs seemed to move in a familiar way, and I assumed this was the man himself. I like to feel I was looking in the right direction and not giving one of the backing singers the wrong idea.
As if I needed any further confirmation of my status as an old fart, I found myself fairly quickly wishing that they would turn the volume down a bit. The drums in particular seemed to be drowning out almost everything else, and at one point I was worried that if I turned my head to one side the sound would blast straight into one ear and out of the other – not a pleasant prospect for the person sitting behind me. I was also convinced that the bass was loosening my fillings. What’s more, Dom seemed concerned that the lighting might induce me to have a fit.
An hour and a half in, it dawned on us that Elton was on top form and enjoying himself, so any prospect of an interval was highly unlikely. I felt some crumb of comfort that at least I didn’t need the loo and that, given the average age of the audience, this would not be true of many of them.
“Oh Nikita you will never know
Just how much I need to go”
And I was actually enjoying the concert. It’s hard not too...Mr John and his songs seem to have been around forever. They were certainly part of the backdrop of my youth and hearing him belt them out in a non-stop high-energy performance was strangely evocative and incredibly impressive.
Two hours in and I have to admit I was getting a little uncomfortable perched on my plastic seat. I cursed the fact that I hadn’t worn some more stretchy jeans, as the pair I was wearing were rubbing a bit on my scar and my mid-life paunch wanted to come out and join the party. I had to concede that if the whole experience had taught me something it was “Goodbye normal jeans’.
On our arrival at the venue, Dom confirmed that he probably was the youngest person there, and there were quite a lot of older people. I wasn’t sure how to feel about this. Am I one of them now? I guess so...with failing sight, grey hair and a recent hernia op scar, I probably didn’t stand out in the crowd of coffin-dodgers.
Although the seats were pretty close to the front, they were a little wasted on me. I could just about make out a few different shaped blobs on the stage. One of the blobs seemed to move in a familiar way, and I assumed this was the man himself. I like to feel I was looking in the right direction and not giving one of the backing singers the wrong idea.
As if I needed any further confirmation of my status as an old fart, I found myself fairly quickly wishing that they would turn the volume down a bit. The drums in particular seemed to be drowning out almost everything else, and at one point I was worried that if I turned my head to one side the sound would blast straight into one ear and out of the other – not a pleasant prospect for the person sitting behind me. I was also convinced that the bass was loosening my fillings. What’s more, Dom seemed concerned that the lighting might induce me to have a fit.
An hour and a half in, it dawned on us that Elton was on top form and enjoying himself, so any prospect of an interval was highly unlikely. I felt some crumb of comfort that at least I didn’t need the loo and that, given the average age of the audience, this would not be true of many of them.
“Oh Nikita you will never know
Just how much I need to go”
And I was actually enjoying the concert. It’s hard not too...Mr John and his songs seem to have been around forever. They were certainly part of the backdrop of my youth and hearing him belt them out in a non-stop high-energy performance was strangely evocative and incredibly impressive.
Two hours in and I have to admit I was getting a little uncomfortable perched on my plastic seat. I cursed the fact that I hadn’t worn some more stretchy jeans, as the pair I was wearing were rubbing a bit on my scar and my mid-life paunch wanted to come out and join the party. I had to concede that if the whole experience had taught me something it was “Goodbye normal jeans’.
Sunday, May 6, 2012
medical notes
The last time I was admitted to hospital was when I caught chicken pox at the age of 30. ‘after having some sort of fit induced by incessant barfing, I must not have been a pretty sight for the ambulance men. They may well have considered saving the NHS a few quid by taking me straight to the morgue, but instead whisked me to ‘a and E. There I was questioned, prodded and poked by a series of nurses and junior doctors, none of whom could find much wrong with me, aside from looking like I’d just crawled out of a local cemetery. One doctor, who clearly hadn’t bothered reading my notes, was disturbed by the fact that I was unable to see how many fingers she was holding up. ‘Apparently she had turned quite pale, presumably at the thought of having to break the bad news of my sudden sight loss.
This time, at least my visit was pre-planned. I had already had my pre-assessment visit the week before, which I mistakenly thought was to check that I was fit enough for the planned hernia repair. It was only as I sat, somewhat dazed in the waiting area, one of the nurses having just let me head butt a magazine rack, that I realised they were testing my resilience for what was to come. She did reassure me that my head was not punctured, unlike my abdomen, which would be repaired by cutting me open and sticking some sort of mesh patch in there. A bit like mending a flat tyre. I wish she hadn’t used the word tyre...a bit too close to the mark.
Fortunately, the staff who looked after me when I was admitted a week later, were a little more careful. In fact, a little too careful for my liking. Once they had decided that I shouldn’t risk walking to theatre so had ordered a trolley, I resisted the temptation to object and point out that my eyes may be f***ed but my legs still work ok. Who knows, they may been protecting me from some particularly vicious magazine racks en route to theatre.
The issue of signing a consent form caused some degree of agitation. They were quite keen to get someone to witness the form to make sure no-one had amended it before I signed – not sure what they were expecting – a junior doctor with a sick sense of humour perhaps, crossing out hernia and replacing it with penis enlargement? I should be so lucky. The fact that, if properly guided to put the pen in the right place, I could actually sign my name, seemed to amaze some of them.
Anyway, as I sit at home recuperating, which involves not moving very much, apart from to find and consume food, I now wish I had checked with the hospital staff that they were going to put in elasticated mesh. Otherwise I fear I may be back for another puncture repair before too long.
Friday, April 6, 2012
bad sight stops play

This picture, believe it or not, is of me playing cricket during the great warm weather we’ve been having recently. I offer it here as photographic evidence of the potential dangers of playing VI cricket without the appropriate protective clothing.
Thankfully, when I play for my club, Durham VICC, we tend not to play on raised pitches, with a sheer drop to rose bushes and other garden-related dangers. And even if we did, I don’t suppose we’d set up the stumps quite so near the edge of the grass. And even if we did, I guess I would, as befits someone with my degree of sight loss, enlist the help of a runner – i.e. someone who can see where the hell they are running – someone who is, therefore, able to avoid going for a quick single, setting off at an angle and ending up doing a twisting half-pike of the wall into the thorny rose garden.
Oh, how I guffawed when Mrs B, normally oblivious to anything to do with the game, showed some remarkable knowledge by suggesting that I should be playing at the Rosebowl. Lol, as they say these days.
Wednesday, March 28, 2012
Achieving Closure
My weekend trip to the Retinal Awareness Group annual shindig in Blackpool last weekend got off to what can only be described as a bit of a shocker.
I was keen to show Mrs B, who was accompanying me, how well I could manage on the train. So I confidently headed towards the toilet on the York to Blackpool train. I knew from previous experience that closing and locking the loo door was going to be the hardest part of the task, but surely I’d come across all the various types by now. Or so I thought. An initial scout of the usual places where the buttons are located found nowt. And, to be honest, there is a limit to how thoroughly you want to run your hands around a public lav. But I had checked the place out several times to no avail, apart from finding a small metal lever, which felt too sturdy to be what I was looking for, but it was all I could find. The door then closed by itself, and I found myself trapped, so I decided to give the lever a pull – after all, what else do you do with small metal levers?
I reckon it can only have taken around 8 seconds for the train to stop, followed by a pause and the rush of feet towards the door and then a knock.
After checking I was ok and showing me politely where the damned door buttons were – the smallest I’ve ever not found in a train loo, I have to say – they left me to get on with it.
Thankfully, they did not bother to announce to all the passengers the reason for the extra stop. That train stops so many times anyway; I don’t think they’d have noticed.
Mrs B had, of course, seen the drama unfolding. But I think she was enjoying seeing how well I coped on the train. She’ll feel so reassured about me travelling on my own.
Blackpool itself was kind of what I expected, but it stretched further along the coast than I had realised. It was full of the usual tat, but we were fortunate enough to enjoy glorious weather. It was just like Blackpool, but with sun.
The conference was interesting. It’s good to hear a lot of positive optimism about the future of genetic testing and potential treatments. Who knows, one day I might actually be able to find those buttons in the train loo without incident.
I was keen to show Mrs B, who was accompanying me, how well I could manage on the train. So I confidently headed towards the toilet on the York to Blackpool train. I knew from previous experience that closing and locking the loo door was going to be the hardest part of the task, but surely I’d come across all the various types by now. Or so I thought. An initial scout of the usual places where the buttons are located found nowt. And, to be honest, there is a limit to how thoroughly you want to run your hands around a public lav. But I had checked the place out several times to no avail, apart from finding a small metal lever, which felt too sturdy to be what I was looking for, but it was all I could find. The door then closed by itself, and I found myself trapped, so I decided to give the lever a pull – after all, what else do you do with small metal levers?
I reckon it can only have taken around 8 seconds for the train to stop, followed by a pause and the rush of feet towards the door and then a knock.
After checking I was ok and showing me politely where the damned door buttons were – the smallest I’ve ever not found in a train loo, I have to say – they left me to get on with it.
Thankfully, they did not bother to announce to all the passengers the reason for the extra stop. That train stops so many times anyway; I don’t think they’d have noticed.
Mrs B had, of course, seen the drama unfolding. But I think she was enjoying seeing how well I coped on the train. She’ll feel so reassured about me travelling on my own.
Blackpool itself was kind of what I expected, but it stretched further along the coast than I had realised. It was full of the usual tat, but we were fortunate enough to enjoy glorious weather. It was just like Blackpool, but with sun.
The conference was interesting. It’s good to hear a lot of positive optimism about the future of genetic testing and potential treatments. Who knows, one day I might actually be able to find those buttons in the train loo without incident.
Monday, February 27, 2012
Go, Foley, Go!
The toughest challenge of last week, and possibly of the year to date was the problem of getting a urine sample from my guide dog, Foley. Anyone who knows me might suggest that I don’t normally have an issue taking the piss, but this was tricky. Guide dogs are generally clever animals and often quite sensitive in nature. So, Foley is none too keen on anyone following him around, encouraging him to piddle and then shoving a pot under him. Not surprisingly, it spooks him a little and so he has learned to wait until the weirdo with the Tupperware gets bored, after which the floodgates open.
What the poor fella didn’t realise was that this time we weren’t taking no for an answer. After several dry runs, so to speak, the vet’s conclusion was that if he wasn’t going to supply it, we would have to go in and get it. The mere mention of the ‘c’ word – catheter – makes me feel a bit queasy. The vet offered to take him out the back to do the dreaded deed. After a millisecond of wondering if I should go with him, I decided that I would probably just get in the way. So I sat and waited, legs crossed in sympathy.
Thankfully, there were no howls or yelps, and he returned to the consulting room full of vigour and not so full of urine. The irony, which I think may be lost on Foley, is that there is a type of catheter called a Foley catheter. I hope for his sake this is not an omen.
Having established that there was no sign of infection in the urine, the only thing that the vet was concerned about was that it was rather dilute – I suppose it must have tasted a bit watery to her – so I needed to get a nice fresh sample in the morning. ‘Oh joy’ I thought, ‘here wee go again.’
This time, I called in the experts. The vetinary nurse had suggested trying a pot tied onto the end of a broom shank, so it could be slid into position surreptitiously. This was a project for my 11-year old son. It sounded right up his street – you can probably get a scouts badge for this sort of thing. As I thought, he relished the challenge, and by bedtime the piss-pot positioning prototype was ready for action. The next morning we pretended everything was normal, which it was, until it was time for Foley’s morning piddle, at which point he seemed somewhat distracted by the sight of Dominic approaching with his Blue Peter style wee-catcher. Now we really had him spooked, and he wasn’t about to ‘get busy’ until we were well out of the way.
Child number one having failed so miserably, it was time for number two to have a go. She accepted the challenge in that gracious way that teenagers do when you ask them for help. “What? You want me to do that! OMG!” She was even more delighted when I told her that Foley was too spooked to go in the back yard, so we’d have to try and catch him unawares in the street. The street where her friends would now be walking to school. Incredulous with the potential for utter shame, she reluctantly agreed. Thankfully, we didn’t have to go far before Foley needed to go, and she expertly managed to sneak up and capture a good splash of fresh pee. Of course, this almost frightened the crap out of Foley, which is something we should remember for when we need a fresh stool sample.
Anyway, the vet confirmed that this time, it was of the right concentration. Which reminds me, I wonder if my home brew cider has cleared yet.
What the poor fella didn’t realise was that this time we weren’t taking no for an answer. After several dry runs, so to speak, the vet’s conclusion was that if he wasn’t going to supply it, we would have to go in and get it. The mere mention of the ‘c’ word – catheter – makes me feel a bit queasy. The vet offered to take him out the back to do the dreaded deed. After a millisecond of wondering if I should go with him, I decided that I would probably just get in the way. So I sat and waited, legs crossed in sympathy.
Thankfully, there were no howls or yelps, and he returned to the consulting room full of vigour and not so full of urine. The irony, which I think may be lost on Foley, is that there is a type of catheter called a Foley catheter. I hope for his sake this is not an omen.
Having established that there was no sign of infection in the urine, the only thing that the vet was concerned about was that it was rather dilute – I suppose it must have tasted a bit watery to her – so I needed to get a nice fresh sample in the morning. ‘Oh joy’ I thought, ‘here wee go again.’
This time, I called in the experts. The vetinary nurse had suggested trying a pot tied onto the end of a broom shank, so it could be slid into position surreptitiously. This was a project for my 11-year old son. It sounded right up his street – you can probably get a scouts badge for this sort of thing. As I thought, he relished the challenge, and by bedtime the piss-pot positioning prototype was ready for action. The next morning we pretended everything was normal, which it was, until it was time for Foley’s morning piddle, at which point he seemed somewhat distracted by the sight of Dominic approaching with his Blue Peter style wee-catcher. Now we really had him spooked, and he wasn’t about to ‘get busy’ until we were well out of the way.
Child number one having failed so miserably, it was time for number two to have a go. She accepted the challenge in that gracious way that teenagers do when you ask them for help. “What? You want me to do that! OMG!” She was even more delighted when I told her that Foley was too spooked to go in the back yard, so we’d have to try and catch him unawares in the street. The street where her friends would now be walking to school. Incredulous with the potential for utter shame, she reluctantly agreed. Thankfully, we didn’t have to go far before Foley needed to go, and she expertly managed to sneak up and capture a good splash of fresh pee. Of course, this almost frightened the crap out of Foley, which is something we should remember for when we need a fresh stool sample.
Anyway, the vet confirmed that this time, it was of the right concentration. Which reminds me, I wonder if my home brew cider has cleared yet.
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